progress tracker: advancing patient-centered research
this is a pioneering initiative dedicated to enhancing our understanding of breast cancer through the lens of patient lived experiences.
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the ultimate goal is to use data and insights to enhance care strategies, inform policy decisions, and improve the overall quality of life for those affected by breast cancer.
breast cancer canada
breast cancer canada is excited to announce the significant strides we are making with our progress tracker breast cancer registry.
this is a pioneering initiative dedicated to enhancing our understanding of breast cancer through the lens of patient lived experiences. the national registry collects patient reported outcomes (pro) data, offering invaluable insights into the diverse journeys of breast cancer patients from across canada.
progress tracker leverages comprehensive questionnaires to gather data from individuals diagnosed with breast cancer at any stage. participants share their experiences from diagnosis through treatment and surveillance, completing these questionnaires four times a year. this approach ensures a continuous and detailed collection of information that reflects the real-world challenges and outcomes faced by breast cancer patients.
by compiling this data into a robust database, researchers and clinicians can analyze large-scale population responses, providing a rich resource to identify trends, issues, and areas for improvement from the patient perspective. the ultimate goal is to use these insights to enhance care strategies, inform policy decisions, and improve the overall quality of life for those affected by breast cancer.
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we are also proud to announce that two e-publications featuring progress tracker were shared at asco 2024, the world’s most prestigious congress for cancer research. these publications highlight the registry’s potential to drive forward-thinking research and impactful changes in breast cancer care. this achievement underscores the importance and credibility of our this project, showcasing the vital contributions of our study participants and the dedication of our team who designed the platform.
feasibility of a longitudinal patient-led prom registry: asco e-abstract e23169
progress tracker breast cancer registry: a breast cancer canada initiative: asco e-abstract e23018
breast cancer canada remains committed to advancing breast cancer research and improving care through patient-centered initiatives like progress tracker. we extend our deepest gratitude to the participants whose ongoing contributions are sharing their stories and experiences. together, we are paving the way for a brighter future for breast cancer patients across canada.
for more information on progress tracker and to learn how you can get involved, please visit: progresstracker.ca
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this article was originally published june 2024.
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