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on his first official day of retirement, david johnston was diagnosed with prostate cancer. “unfortunately, this, and the pandemic, meant that all my retirement plans had to be cancelled,” says david.
but it took one long and frustrating year to get to that point.
despite having a family history of prostate cancer, david’s doctor did not conduct regular prostate specific antigen (psa) testing, which is used to detect whether someone has prostate cancer. it took david finding blood in his urine to eventually be referred to a urologist who did the blood test which showed his psa levels were high – a sign that prostate cancer could be present. after a series of tests and imaging, including a biopsy, all results came back negative. however, the urologist saw something of note in an mri and referred david to another urologist who had more sophisticated biopsy technology.
by the time the prostate cancer was eventually found through the second biopsy a year later, david’s psa levels moved from intermediate risk to high risk. surgery to remove the cancer happened three months after the second biopsy, but unfortunately, the cancer had already spread outside of the prostate capsule. “this part was quite scary as it was unclear if the cancer had metastasized,” david says. because the cancer was still present, david had to undergo radiation therapy and two years of androgen deprivation therapy (adt)—a notoriously unpleasant therapy used to treat prostate cancer.
“they refer to adt as having a “constellation of side effects” and unfortunately, i experienced most of them,” david says.
some of the mental and physical side effects david experienced over two years were hot flushes, loss of sleep, joint pain, chronic fatigue, aphasia, spatial cognition issues, and to top it off, his blood lipids skyrocketed. elevated cholesterol and triglycerides, also known as blood lipids, are a known side effect of adt. the body only needs a small amount of lipids to function, and too many meant david was at more risk of getting a heart attack or a stroke.